Monday, November 2, 2009

Crazy Weekend

I am home right now after spending most of the last few days at the neuroscience ICU with my husband. He has developed progressive neuropathy. That means his nerves have started shutting down starting with his feet and progressing up his legs. Then his fingers and hands started the same thing with the numbness moving up his arms and into his chest area. The doctors are trying to decide what is going on. They thought at first it was Guillain Barre Syndrome, but he doesn't have all the markers for that so they are trying to figure out what else is going on.
They did find that his heart is not beating as strongly as they would like and that he is getting liquid in his lungs from the back flow. That doesn't explain the numbness though.
I am so grateful for the kindness of friends and fellow church members who have stepped in to help with my sons. The one who is autistic needed a place to go where he was familiar with at least someone. Fortunately, Donna works in his classroom at school, so they are very familiar with each other. This was a great comfort.
I hope today the doctors will be able to do the tests they need to figure out what is going on with my husband. Most of the other people I talk to in the waiting room at the ICU have family members who have had aneurysms or strokes, so there are a lot of very tired and tense people in the waiting rooms. We do join together and try to support each other.
I am also grateful for medical science that helps keep people alive while the doctors figure out what is wrong. The nurses have been great.
I am sorry this is so disjointed, but I am also trying to battle a migraine.